Ten Things You Should Know About Invisible Illnesses
Here is a shortlist of 10 things that you should be aware of in no particular order! Note, this is personal to me; others may have different preferences.
1. Understand how much pain a person can be in even though they are smiling and laughing.
Why - Because people such as teachers and friends often thought I was faking when I couldn't do things. I'd get comments like, "You seemed fine yesterday," even though I was barely holding it together.
2. It's tough to talk about.
Why - Not sort of hard but nearly impossible for some, so please be so thankful for the guests who come on the Post Concussion podcast because talking about personal struggles is no light matter.
3. I want your understanding, not your pity.
Why - I know it's hard to look at me now; the more I share with the world, the more concerned looks I get. Believe me when I tell you, I know my story has some sad parts, but there are happy parts too. I'm not sharing for you to feel bad. I'm sharing so then you can understand what someone with an invisible illness may be going through.
4. Physical limitations often bring on mental struggles.
Why - Living with any type of illness can be mentally draining, so it's essential to look out for those struggling even if they seem "happy." Overcoming mental health problems alone is nearly impossible.
5. I can do everything you can do; it's probably just a better idea if I don't.
Why - I have limitations due to having a brain injury. I can often push past those, which is why you'll see me go to a concert because I love music. Though be aware I will likely pay for the event later, which is why the next day I may not be up for so much.
6. It's easy to hide.
Why - The longer you live with something invisible, the easier it gets. Ask how someone is doing, ask properly (Read Family to learn how to say something other than, "Are you okay?") If you're the one hiding it talk to someone, you can't do this alone despite how much you think you can.
7. We're all different.
Why - Because no two brain injuries are the same, we may suffer from the same symptoms, but how those symptoms affect us differs based on our current life situation. For example, sensitivity to noise may not be so upsetting if you live in a quiet home, but it may be hard to manage if you have two bubbly children.
8. Medical suggestions are welcome, but please be aware I'm trying.
Why - I've had many friends suggest something that worked for their headaches or something they read online. I truly appreciate that you care enough to mention something that may help! But just because I haven't been improving in your eyes doesn't mean I haven't been trying; it takes time to figure out what works best.
9. We heal at different rates.
Why - I have suffered from 10+ concussions, and I've met many individuals who have suffered from one. That does not mean one of us is having a worse time than the other.
10. Educate yourself
Why - There's so much to know about brain injuries like symptoms such as memory issues, lack of ability to control emotion, and balance problems. There's also so much more than just a list of symptoms, the brain is complex; therefore, the injury is as well.
One day at a time,
Bella
